THE PERCEIVED ROLE OF GOD IN HEALTH AND ILLNESS: THE EXPERIENCE OF JAVANESE MOTHERS CARING FOR A CHILD WITH THALASSEMIA

Abstract: Thalassemia is recognized as one of the major health problem in Indonesia. It is estimated that about 10% of Indonesian population  are  carrier  of  the  mutated  gene.  Nevertheless  Thalassemia  is  not  well-understood  by  communities.  This paper addresses how Javanese mothers view the role of God in  Thalassemia. Semi-structured interview was employed to  five  mothers  having  a  child  with  Thalassemia  residing  in  Semarang,  Central  Java.  Most  mothers  with  Thalassemia children  stated  that  Thalassemia  was  a  result  of  bad  consequence  in  the  past,  known  as  karma  which  they  held  at present.  Having Thalassemia children would be perceived as ‘destiny’ and God’s trial to the family. All mothers agreed that acceptance (nrimo ing pandum) of the child’s condition without questioning to God was essential as a way to cope with. 
This result points to the cultural awareness that exits in community, to the need for health care providers to be sensitive to the health-related religious beliefs of patients and their families. 
Key words: Javanese mothers, Thalassemia, beliefs, nrimo ing pandum
Author: Costrie Ganes Widayanti
Journal Code: jppsikologiklinisgg110001

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